Why MHEA?
The Minority Health Engagement Advocates of Chicago (MHEA) is a not-for-profit organization that is committed to the representation and advocacy of minorities with diseases of the Pancreas (like pancreatitis and diabetes) and Sickle Cell Anemia.
We believe in a future where Pancreas and Sickle Cell Anemia (all prevalent chronic conditions many minority communities struggle with) are equitably funded and supported for education, research, and other needs marginalized communities face.
Our Mission
Improve the health and well-being for individuals who face certain chronic conditions specifically all diseases of the pancreas, and sickle cell disease in marginalized communities.
Our Vision
Create a world where minorities diagnosed with diseases of the Pancreas and Sickle Cell Anemia can be fully educated and thrive despite diagnosis.
MHEA exists because of stories like Nia's.
Nia was diagnosed with Sickle Cell SS Disease at birth. Since birth, Nia's spunky demeanor, love of life and smile kept the nurses laughing and though she was in and out of the hospital she was a happy baby.
At two years of age, she began experiencing painful bouts of dactalytis, a painful leg and foot swelling common for kids with this chronic illness, but Nia still tried to maintain her joy.
Over the years, Nia has experienced gallbladder removal surgery, numerous blood transfusions, chronic pneumonia also known as Acute Chest syndrome, chronic anemia, and many other unpleasant side effects of Sickle Cell Disease.
The most common side effect of this chronic illness is pain. According to the CDC, pain is the most common complication of SCD, and the top reason that people with SCD go to the emergency department or hospital. Sickled cells traveling through small blood vessels can get stuck and block blood flow throughout the body, causing pain.
Living with Sickle Cell Disease can cause mental health issues, and the constant hospitalizations disrupts the routine necessary for stabilizing life.
And stories like Jennifer's...
And THOUSANDS more stories just like them...
Perhaps you or a family member has been on a health journey that connects to our work?
We invite you to share that experience with us.